Angaben zum Forschungsprojekt
Soziale Rehabilitationsfaktoren bei Schädelhirntraumatikern
Ziele und Fragestellungen:
Outcome-Maße auf Seiten des Patienten sind funktionale Selbständigkeit, beruflicher Status, psychische Befindlichkeit, Lebensqualität sowie neuropsychologischer und neurobehavioraler Status.
Verbundprojekt / Gefördertes Projekt / Studie
Bundesministerium für Bildung und Forschung (BMBF)
Deutsches Zentrum für Luft- und Raumfahrt e. V. - DLR Projektträger des BMBF
Deutsche Rentenversicherung Bund
Social variables in the rehabilitation of patients with traumatic brain injury
A traumatic brain injury (TBI) represents a devastating experience not only for the single patient, but for the whole family. There is convincing empirical evidence that the emotional, behavioral and personality changes which occur in patients place a great burden on the family members. However, to date we have only limited knowledge regarding the role the family plays in the adaptation process of the patient. It can be expected that social variables should have a motivational impact on the patient during the phase of acute rehabilitation. Furthermore, social variables should influence the long-
term rehabilitational outcome since the extent of social support the patient receives is thought to be a key variable in the extent of potential modifications on the levels of disability and handicap, in the amount of emotional distress experienced, and in the quality of life of the patient.
In light of the few investigations available, this study is conducted to explore the relevance of social variables in the adaptation process of TBI-patients. The focus is on family and dyadic characteristics and on supportive interactions of spouses of TBI-patients. Disabilities, emotional distress, and quality of life of the patient are considered outcome measures.
In this prospective longitudinal study, patients and spouses will be approached at four different points of time: during the acute stay in the hospital, 6 months, 12 months, and 18 months after the incident. Furthermore, patients are rated by their therapists at time of discharge from acute rehabilitation. Patients and their spouses are asked to participate if the patient shows an initial Glasgow Coma Scale-Score of 3-12, is aged 20 to 60, and lives within a close intimate relationship which lasts at least for one year. Additionally, patients with subarachnoidal hemorrhage and their spouses are approached, too. This is because these patients show deficits similar to those presented by TBI-patients and therefore possibly could act as control group. The study sample shall consist of 50 couples.
The aim of the study is to describe the differential pathways in which social variables influence the long-
term outcome in traumatic brain injury and to identify relevant family and dyadic characteristics as well as supportive interactions contributing to a positive adaptation of TBI-patients.