Bibliographische Angaben zur Publikation
Psychosocial issues in children and adolescents with HIV infection evaluated with a World Health Organization age-specific descriptor system
Giannattasio, Antonietta; Officioso, Annunziata; Continisio, Grazia Isabella; Griso, Giovanna; Storace, Cinzia; Coppini, Simonetta; Longhi, Daniela; Mango, Carmela; Guarino, Alfredo; Badolato, Raffaele; Pisacane, Alfredo
Department of Pediatrics, University Federico II, Naples, Italy
Journal of Developmental and Behavioral Pediatrics (JDBP), 2011, Volume 32, Issue 1, Seite 52-55, Hagerstown, Maryland: Lippincott Williams & Wilkins, ISSN: 0196-206X (Print); 1536-7312 (Online)
After active antiretroviral therapy, children with HIV
are clinically well, whereas psychosocial issues continue to influence their quality of life. The International Classification of Functioning, Disability and Health (ICF
) of the World Health Organization evaluates health status and environmental and social factors associated with health. We investigated the efficacy of the ICF
to describe the health status and needs of a cohort of children and adolescents with HIV
seen at a reference center for pediatric AIDS in Europe.
A quantitative analysis of structured interviews was performed. Caregivers of children and adolescents with HIV
infection in follow-up at 2 reference centers for pediatric AIDS were enrolled. Four major areas included in the ICF
instrument were investigated: impairments of body structures; impairments of body functions; environmental factors; and activity limitations and restrictions to social life.
Forty-one families of children with HIV
were enrolled. Body structures and functions were marginally impaired, whereas environmental factors and psychosocial issues had a relevant impact on quality of life. Most families considered environmental factors to be 'barriers'; these were poverty, unemployment, and single-parent family structure. Activity limitations and social restrictions were also reported in a few cases. Almost all parents reported problems in disclosing their child's HIV
status because of the fear of social stigma.
Psychosocial issues are part of the well-being of children with HIV
. The ICF
is a standard tool to evaluate the clinical and psychosocial status of children and adolescents with HIV
infection and to measure the impact of therapeutic interventions and strategies on psychosocial functioning.
Informationen in der ICF:
Zeitschriftenbeitrag / Forschungsergebnis
Journal of Developmental and Behavioral Pediatrics - JDBP
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